Wesley’s Story

What began as an orthopedic surgeon appointment changed the course of this family’s life forever.

Wesley was diagnosed with Hurler’s disease, an extremely rare illness. Soon afterward, Alex and Whitney were furloughed from their jobs in the wake of COVID-19. That’s where we came in.

The Kuma Foundation, backed by funding from The Alliance of Greater Prince William, was able to provide financial assistance to get the Huntington’s back on their feet.